|My name is Simon Ibell, and in my 33 years on this planet, I have been told 8 different times that I will have 1 more year to live.
Clearly, iBellieve otherwise.
As one of approximately 30 people in Canada (and 2,000 worldwide) born with a rare genetic disorder known as Mucopolysaccharidosis II (MPS II or Hunter syndrome), I fight a daily battle against every cell, system, organ, ligament, joint and bone in my body just to survive.
iBellieve I have gone through this for a reason.
While my specific condition is rare, my story is not. MPS II is one of approximately 7,000 rare diseases that collectively affect 1 in 12 people.
Yet despite our collective numbers, the rare disease community gets little financial support or public awareness, and we are often all but ignored by our governments around the world. So in 2010, I launched the iBellieve Foundation to fund the search for a cure for MPS II, and with it – all 50 Lysosomal Storage Disorders – and set an example for other members of the rare disease community.
iBellieve you can help me cure MPS II, and impact many others along the way. I invite you to join me on this next phase of my journey.
Founder and CEO iBellieve FoundationWays to Donate